Research
We
have previously given the information on a number of research
projects to be conducted at the World Transplant Games in Göteborg,
June 2011.
The
information was given in Transworld Journal.
In the
registration form those who register have been asked indicate
whether they would provisionally accept or not accept to be invited
to participate in the research projects.
We
sincerely hope that most transplant athletes will accept to
participate and we hope that those who are not
invited to participate will not be too disappointed. Rather many will
be invited to answer questionnaires regarding their attitudes to, and
enjoyment of, participating on the World Transplant Games (A below).
Few will be invited to the studies regarding the physical factors (B
below).
We
intend to publish extensive updated information on the research
projects for the transplant athletes who are willing to participate
in the projects.
Research
A:
Transplant
Athletes´ experience of psychosocial well-being, perceived barriers
and facilitators. A
study at the XVIII World Transplant Games in Göteborg
A
pilot study was performed with the American Team during the World
Transplant games in Brisbane 2009. We give demographic data only, in
order not to influence the results of the study in Göteborg.
There
is a presentation of the Center for research on Welfare, Health and
Sport and on the coordinators of the project
Excerpts
from the application to the regional ethics committee
Form
for informed consent
The
role of training on endothelial function, bone remodelling and bone
structure in transplant athletes. A
study at the XVIII World Transplant Games in Göteborg
A
group of researchers at the Sahlgrenska academy at the University of
Göteborg is responsible for the study.
Information
on the researchers and their institutions is given in the document.
An
outline of the study is given in the document.
The
study has been submitted to an ethics committee for approval. The
application by necessity in Swedish follows the project outline and
gives information on how the subjects are informed and cared for.
Information
that will be given on paper to all those who will be invited is given
in the document entitled.
The
athletes will also be asked to give information on their medical
history in response to a questionnaire. The medical forms which have
been submitted will also be used for information on medical issues.
A
preliminary version of the informed consent form which the
participants will be invited to sign is given in the document.
In
Conclusion
It
is our sincere hope that the information given is understandable and
that all those invited to participate in the studies will be willing
to do so.
Göteborg
in March
Sincerely
yours
Håkan
Gäbel
MD
PhD
Chief
medical officer